Tuesday, October 30, 2007
Sunday, October 28, 2007
Monday, October 22, 2007
This is the time we have been looking forward to for a while now. It feels like there is an end in sight to the NICU days. In retrospect, this has really been a short time and has flown by. Also, being up there all day puts things in perspective as we remember to realize not only are we not alone in this, but that there are lots of other babies who are much sicker than ours. We need to remember to pray for them as well. God has been so good to us!!
Sunday, October 21, 2007
Tuesday, October 16, 2007
Can you believe this? Check out these weights..
Finn 5lbs 13oz
Noah 5lbs 11oz
An occupational therapist is working with Finn on his feedings and he seems to be doing better. While we were there today, he finished his full bottle without any breathing issues, but before that he only took about 1/3 of his bottle. We are thinking this might be his break through week as this weekend would be the 40-week mark. All in all he is doing well and we are being more patient to not rush him home before he is ready.
Sophia has such spiky dark hair and big blue eyes, especially when she is feeding. We tried to capture it on video. Some say that hair that stands straight up as a baby will eventually be curly; we'll have to wait and see. We tried to swaddle Sophia and Cohen together in the same blanket but Cohen kept trying to eat Sophia's nose to her dismay - must be the milk breath.
Monday, October 15, 2007
Mari's parents watched the little ones on Saturday night so we could go out on a little date after visiting Noah and Finn. It did feel good to put on some real clothes and hit the town. Oh, how dates have changed. We had 8:30pm reservation at Crapitto's (I know, it doesn't sound like a good restaurant) for a nice dinner al fresco. By 7pm we were asking each other why we made such a late reservation and that we should go early and then get one of those hotel rooms by the hour - not for that, to take a nap! Like I said, date night has changed. We had a great time on our date and made it back home for the 12am feeding to relieve the weary grandparents. Mari looks amazing and as stunning as she did when we first met!
Friday, October 12, 2007
Finn's Car Seat Test
Noah needs our prayers. He is having some breakdown of the skin around his stoma which is making it difficult to keep his ostomy bag in tact. This makes for uncomfortable days for him as they have to replace the bag 4 - 6 times a day. Every time they do this they change the feeding tube which is causing ulcerations and bleeding of his fistula. The bag change is also painful for him since each time they have to rip the tape off of his irritated skin. We were hoping to be talking second surgery next week, but it looks like patience is the name of the game for us right now. The surgeon told Chris that we should expect the surgery to be at the end of October or later. Chris is off on Tuesday and we would like to meet with the surgeon in person to voice our concerns about his skin and the fact that he has to go through that pain so many times each day. We'd like to know if it's better to chance doing surgery early to relieve this or if they think it's still better to wait. My heart is broken right now as I desperately want my boys home and to have the family all together. Won't that be a joyous day!
Noah's Best Friend - The Paci
Cohen and Sophia are doing really great at home. I had them by myself for an afternoon last week while my parents went to the hospital to visit Finn and Noah. It was so much fun but I was having a bit of a panic thinking about being alone with 4!
Sophia and Cohen Swinging
Chris and I are adapting to parenthood. I have heard over and over from my girlfriends how hard children can be on your relationship. I am starting to see those effects. I think it's the lack of sleep and just plain lack of knowing what to do that makes it very easy to bicker about anything. Yesterday I accused Chris of not caring about his children because he hasn't read all 110 books that I have stacked around the house on how to raise a good family, child development, breast feeding, sleep patterns, etc. I mean - he should have had time for at least half of those in between working, coming home and feeding two babies, going to the hospital, right? After he asked me if I'd like him to take a sabbatical and spend the next two years reading, I quickly apologized and we both got a good laugh about it. I'm sure we'll have many laughs ahead. :)
Monday, October 8, 2007
Busha, Cohen & Sophia
Saturday, October 6, 2007
Friday, October 5, 2007
I know you checked the blog 1st thing in the AM the other day, didn't see a post; checked again the next day, didn't see a post; checked this AM, didn't see a post, and began to wonder if we made it or not. Well, let's say we are alive right now to talk about it. No, it really hasn't been that bad. Cohen & Sophia sleep well and eat very well. The trick has been to wake them to eat before they wake us. Knowing that we have 2 more still to come home makes twins a piece of cake.
Cohen & Sophia had their 1st pediatrician appointment yesterday with Dr. Herman (what is it with this connection to the name Herman?). They did well and are looking healthy. He told us to limit the amount of exposure to people and crowds for the next 3 months because at this stage, the babies immune systems just aren't strong enough.
The blood work came back on Noah, and the little dude has a bladder infection - we all know how much those hurt! He has been on the appropriate antibiotics for a few days and is already feeling better. The nurse told us Noah did not have any bradys yesterday! The surgeons consulted a pediatric GI specialist, Dr. Roads, to check in on Noah to see what he thinks. Dr. Roads said that since Noah is not getting fed by mouth, he is not able to use the pancreatic enzymes used to break down fat and protein. So he started Noah on Elicare, a formula specially designed with these enzymes so that he can process the protein and fat in milk. He also met with the surgeons last night to discuss re-connecting his intestines, but also said that Noah had to complete 2 weeks of antibiotics prior to surgery. According to his nurses, Noah is tolerating these feedings very well and gained a little weight.
They are still assessing Finn's response to the reflux meds to see if they are working. They place him on oxygen during feeds to help with this, but as of now, they don't think he'll need to come home with oxygen.
We miss Finn and Noah right now and will hopefully be able to see them this weekend as Mari's parents fly in today - yea - help!! Busha has been at the hospital loving these 2 little guys everyday and we are so appreciative of her love.
The past few days have been awesome! Yesterday, we got the house scrubbed down from top to bottom while the babies were sleeping --- thanks Merry Maids courtesy of NW Houston Mothers of Multiples! We are also back to eating homemade meals --- thanks Jen for coordinating meals. The Community of Faith meals team will spring into action over the upcoming months for us. What a huge blessing!
Diaper Count = 42
Bottles Fed = 32
Smiles from happy parents = Countless
Wednesday, October 3, 2007
They started Finn on medication for acid reflux, although the pH study said it could be reflux or it could not be reflux - glad we paid for that test! We'll do a little trial to see if that keeps him from dropping his oxygen saturation. The unexpected news about Finn is that he is tentatively scheduled to come home next week - wow!
We are so excited to have the babies home and love the monitors. They have not gone off nearly as much as we thought they would and do allow us to sleep a little better. We have our first pediatrician appointment tomorrow - wish us luck!
Tuesday, October 2, 2007
Cohen & Sophia strapped in
Monday, October 1, 2007
Noah was wide awake for the first time in a really long time this weekend. He still gets milk through a feeding tube directly into his small intestine and takes a small bottle twice a day. He has lost a little weight since being on milk only. The hard part has been trying to get the feeding tube and ostomy bag to stay in place. There have been times when all the milk has leaked out of his bag for several hours. I think we have finally got that straightened out after some creative taping. After a little weight loss, Noah enters the pod at 4 lbs 9oz.
Finn is still de-satting where his oxygen levels drop to 50%, especially when feeding. We are waiting for the results of a pH probe study to determine if he has acid reflux, which can cause his oxygen to drop. If this is the case, he will begin meds to help to out. He is still gaining weight and we wouldn't mind if all the babies could come home with the feeding tube and pump. Just think...wake up in the middle of the night, hit the power button, go back to sleep. Works for me!
Sweet Sophia - what can I say!? She is doing very well, despite the occasional brady. She is always the most awake, checkin everything out. She is quite the eater, out-eating her 3 brothers. She will likely come home in the next 2 weeks and probably with a monitor as well. She is almost 5 lbs now!
Sophia Finally In the Crib With Her Brothers
I have somehow found myself in the JC Penney dressing room on two occasions in the past week trying on different girdles to see if I can miraculously suck in this skin that still makes me look like I'm 6 months pregnant. This is not an easy task. After a lot of huffing and puffing to cram myself into a piece of fabric that looks like it was meant for a small child, I finally got the first one on. Instead of looking pregnant, it appeared that I was having an asthma attack as my face was turning blue from not being able to breathe. In the second attempt, I decided to try one of those corsets with all of the hooks, thinking that would be a much better solution. This one was an improvement from the first trial until I tried sitting down and realized I couldn't bend at all. After seriously considering purchasing this and planning to simply stand up for the next month or so, I left once again empty handed and laughing to myself as a nice lady congratulated me on my upcoming arrival.